** I have never had as much trouble hitting the publish button on a post like I’ve had with this one. I’m don’t understand why, but I’m sure it has something to do with making one of my invisible illnesses a bit more visible. And remembering the times I wanted to stop, probably should have […]
I’ve written before about the shame I used to feel about having survived so long with Type 1 diabetes. Surviving while basically ignoring it for 4 decades. Surviving while so many didn’t or who’ve developed complications and worked so much harder at it than I did.
But that is a personal shame, one that I […]
Actually, it’s been a damn long while since I posted anything here. Good things are happening advocacy wise, I was named to the 2014 Medicine X Honor Roll and I’ll be part of a panel discussion on patient generated data at Health Datapalooza in May. The kind folks over at DSMA Live invited me over […]
At Medicine X I had the fortunate experience of being on a panel moderated by Carly Medosch on the topic of invisible pain and how it can affect people. My pain, caused by depression, really isn’t viewed as a debilitating pain by most people.
I was fully expecting to hear things like “You don’t deserve […]
Walking down the hall toward my first panel discussion on Chronic Illness and Depression (check it out below), I was feeling pretty anxious. While I’ve written extensively of my own experiences with depression and my journey with therapy, being recorded & even part of a live webcast was uncomfortably different. I was putting a […]