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Semicolons

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** I have never had as much trouble hitting the publish button on a post like I’ve had with this one. I’m don’t understand why, but I’m sure it has something to do with making one of my invisible illnesses a bit more visible. And remembering the times I wanted to stop, probably should have […]

It's Been A While

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Actually, it’s been a damn long while since I posted anything here. Good things are happening advocacy wise, I was named to the 2014 Medicine X Honor Roll and I’ll be part of a panel discussion on patient generated data at Health Datapalooza in May. The kind folks over at DSMA Live invited me over […]

The Voices I Hear

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At Medicine X I had the fortunate experience of being on a panel moderated by Carly Medosch on the topic of invisible pain and how it can affect people. My pain, caused by depression, really isn’t viewed as a debilitating pain by most people.

I was fully expecting to hear things like “You don’t deserve […]

A Tale of Medicine X

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Walking down the hall toward my first panel discussion on Chronic Illness and Depression (check it out below), I was feeling pretty anxious. While I’ve written extensively of my own experiences with depression and my journey with therapy, being recorded & even part of a live webcast was uncomfortably different. I was putting a […]

Are Patients a Distraction at Conferences?

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** Next week, I will be attending the Medicine X conference as an ePatient Delegate Scholar. Medx is one of the most patient focused conferences on the planet with attendees from all portions of the healthcare spectrum and the world. I thought this might be a good time to re-post this from about […]