Question for Animas Ping users…

Is anyone besides me having an ungodly amount of occlusion alarms?

 

I have been thru two months worth of supplies in the last two and a half weeks.  I’ve gotten some replacements. but they still owe me 2 boxes of insets.

Things I know and have done

  • I have already received a replacement pump
  • cycle the cartridge, twisting the plunger up and down twice to make sure lubricant is spread
  • I rotate sites and have put the last 3 sets (from different lot numbers) in sites I have never ever used, even for injections.  These all occluded
  • I am frustrated beyond being irritated.  I am actually angry enough now to go back on MDI
  • Left a message for tech support yesterday, seems they were awfully busy, left a message and never got a call back
  • called this morning, spent 15 minutes or so on hold, got connected to message services again and once I got connected to a message agent, the call immediately dropped.  On hold once again …

There is only one word for this at the moment : CLUSTER-FUCK

©2011 Scott Strange, Strangely Diabetic and http://StrangelyDiabetic.com

Another Blue Candle and Yet Another

This week has seen the loss of yet two more young people, taken way before their time by this thing we call diabetes. This particular round of blue candles has seemed especially poignant to me for some reason. Posts today by Jess, Sara, and Kelly have really brought the point home that no matter how hard we work, how hard we try the deck is stacked against us.

It is said that every 8 seconds, somewhere in the world, diabetes kills someone. A few weeks ago, the O for Outrage Campaign kicked off  and when I heard DSMA Live w/ Professor Jean Claude Mbanya on 7/21/2011 speak about the things that happen in other countries, the things we never hear about; I didn’t find myself filled with outrage.

Instead it was an incredible sadness.

A sadness for the voices lost, the families devastated, a world denied the lives of these people. These children, brothers, sisters, mothers, fathers, aunts, uncles, grandchildren, nieces, nephews, and friends.

All gone. Their smiles lost, voices silent, dreams unfulfilled.

How can the world not feel this loss, not grieve over it? How can we let this stand and still call ourselves human?

©2011 Scott Strange, Strangely Diabetic and http://StrangelyDiabetic.com

People with Diabetes – Video Interview

I had the pleasure of doing a video interview with VJ (@diabetic365 on twitter) over at Diabetic365.com.  VJ, thanks for the opportunity and every one check out parts 1 & 2 on youtube

Part 1

 

Part 2

 

VJ, thanks again for giving me an opportunity to participate in your People with Diabetes project!

©2011 Scott Strange, Strangely Diabetic and http://StrangelyDiabetic.com

Don’t Confuse Threat with Risk

Over the past few days, much has been written in the DOC about Medical Devices Susceptible to Hackers (Read Kerri’s interview with Jay Radcliffe and Kelly has one of the great posts with a list of links to other great posts about it as well.  Oh and don’t miss the list over at Trials & Tribulations of Being a Type 1 Diabetic).

Various media outlets had sensationalized headlines such as the one mentioned above.  But if you read closely, you’ll notice something.  Radcliffe had the knowledge, skills and inside information (such as the pump serial number).  It took all three components to make the hack even possible.

In the computer industry, which the Black Hat Digital Security Conference deals with, vulnerabilities such as these are often presented in the exact matter that Mr. Radcliffe presented his.  Designed to get attention so the vulnerability will, hopefully, get enough of a spotlight put on it that the manufacturers will address the problem.  I really have no issue with how he presented the information, as a matter of fact similar vulnerabilities have been found in pacemakers, presented at this exact conference in 2008.   As far as I can tell, there has not been a single reported case of this actually happening.

So here is my take.  Please take a moment as you read it to consider what I mean about threat being a different thing from risk.

The threat is real, it is reproducible and has been demonstrated.

The risk is of this threat actually affecting any random individual is, for all intents and purposes, non-existent.

And that’s all I got to say about that.

©2011 Scott Strange, Strangely Diabetic and http://StrangelyDiabetic.com

 

Channeling My Inner Geeky Gamer

** I’ve been known to play an occasional  MMORPG or two.  One I played for several years was called Everquest. One of my guildies (yo Underguild!) was a writer and wrote some pretty great short stories.  She got a few of us to write a little fan fiction about our characters.  Here’s Chapter 1 of my story about my Troll Shaman, Zhuol.

Chapter 1

The Heyokah Doglegn, wearily made his way to the Grobb arena. Today was another of the games that amused some, but bored most.

As a shaman, his task today was to observe to see if any of the younglings could possibly have the guidance of their ancestors. It was hard not to be discouraged, as it had been more than a generation since one had been so blessed. The last of his students had met their fates at the hands of the cursed Frogloks and his revenge, while satisfying the rage of his ancestors, had not filled the void or eased his grief.

Shaman were both revered and reviled among the Trolls. Revered for the blessings that they could bestow upon an army and reviled for the suffering they could unleash upon their enemies. Doglegn had become used to it in these many years, the fearful glances, the pleads for help, the constant whining… He sighed and moved on.

As he arrived at the arena, people made room for him as he approached his booth and he was surprised to see an old friend awaiting him. “T’Belthis, it is good to see you my friend. What brings you here from the North?”

The Dark Elf spoke wearily, “Ah, Doglegn, so good to see that you are well. Innoruuk seems to have an interest in today’s proceedings, so I thought perhaps his High Priest should attend”

“Innoruuk?” The mention of the mere name brought most Trolls to their knees, but Doglegn was far wiser than that and only felt a momentary chill.

“It seems that much will be needed from this generation. Innoruuk has not chosen to show me what, only that there are ones here who are to be watched” replied the cleric.

As the two caught up on the events of their lives and of the world, the games progressed. Not all entered these games; those who did not were relegated to the minor roles of the city.

They were not so much games as they were trials of passage. If you were deemed worthy, you passed and would end up in one of the guilds based upon a number of factors, bribery often the most important. If you were not worthy, they did not bother with bringing you back from beyond this life.

As he always did, the Heyokah Doglegn observed the games though the eyes of the spirits. He could which of the young Trolls had their ancestors with them, which had been abandoned by them and, most importantly, which ones could ask them for, and receive, their help. He had not seen any worthy students in many years.

A roar from one side of the arena caught his attention as a young Troll dispatched five others who had allied against him, only to fall to a sixth’s treachery. Even as he died, he ran his sword though the chest of the last. “That one is worthy. The others, not so much”, mused the shaman.

“Who is that warrior there, Doglegn?” asked T’Belthis pointing to a young troll below them.

“His name is Zorx. His ancestors are with him and it has always been so. And it will continue to be so, for it is not in his nature to dishonor them.” Indeed, Zorx’s path had long been known

The Dark Elf pondered for a moment the reference to a Troll and honor. Trolls did have an honor system, of sorts. Most could not fathom it as Troll society tended to be self-serving at best. However, since revenge was encouraged, most of the serious in-fighting was avoided.

He had long suspected that the real reason the Frogloks hated Trolls was not the Troll’s allegiance to evil, but really because they couldn’t get their good-goody brains wrapped around what Trolls thought was honorable.

T’Belthis started to speak about his new recipe for Gnome crunchies, when he noticed the Heyokah had fallen silent, looking somewhat forlorn.

Doglegn spoke quietly, “I fear that my time is growing short in this world, old friend. My hope is running out on finding a new Heyokah apprentice. If that should occur, then I fear the time of the Troll in Norrath may be at its end.”

“Do not give up hope, old friend. Innoruuk will provide”

Finally, the last ten survivors were in the arena. Zorx was the odds on favorite, but the Heyokah’s vision was drawn to one of the others.

“Who is that you stare at, Doglegn?”

“An orphan, who has not said a word in five years. Someone who makes his way here by cleaning latrines and collecting mushrooms. Someone never noticed by any. It is most unusual for one such as him to even enter these events, let alone get so far. I do not even know his name or his heritage” replied the shaman.

Closing his eyes, he called upon his ancestors for sight. Something was strange, they did not come at first, but then the sight came. Slowly at first, then as a raging torrent that threatened to overwhelm him, Doglegn understood. The Heyokah had become complacent, allowing his grief to stagnate his communication with his ancestors. Only allowing him to see through the eyes of grief. Opening his eyes, Doglegn suddenly saw the world anew, and it occurred to him that the power of his ancestors was not limited to those he know, but was indeed bound by all that had come before. Instead of a small pool it was an entire ocean that could be harnessed.

Finally able to turn his attention to the fight before him, he saw the young orphan was surrounded by his ancestors, their power flowing through him at a level Doglegn had rarely been able to obtain himself.

The orphan’s ancestors were indeed helping him. He was moving much faster than his adversaries and his ancestors would attack those who came near. Indeed, one of them had fallen to the ground clutching his stomach as he became violently ill. Another shook, as he was barely able to lift his sword from his side as Zorx ran him through.

The crowd had begun to whisper “Heyokah” and a nervous quiet fell over the arena.

Doglegn became fearful and summoned his own ancestors to protect the crowd if needed. This was an untrained Heyokah. Wielding incredible, raw power. Power that was not controlled and could very well consume him and those around him.  Most Heyokah like this one were either insane or dead to their own unbridled powers and pride.

On some level, T’Belthis realized what was occurring and began marshaling his own powers, but Doglegn stopped him. “To interfere is forbidden, not even the High Priest of Innoruuk would be spared such a transgression”, he said in a deadly tone. Without question T’Belthis regained his composure, his attention drawn to the two remaining combatants.

Both were tired, bleeding, circling. Zorx knew this was no ordinary Troll. An orphan with no training should have died long before he could have even entered this contest.

He had seen this orphan before, indeed had tormented him as was the custom. He also remembered that no one seemed to bother this one any more. No matter how painful the torment had been, the orphan had never made a sound. Indeed, though the orphan was wounded, the pain did not seem to diminish his will.

The orphan could feel the power that had protected him waning, his will to control it had become weak as he battled. He did not know where this power came from or what it was, only that it had allowed him to survive his grief, his rage. He knew this opponent was far more dangerous than any Froglok or any of the others he had fought this day. Sensing that to attack would be a mistake, he waited.

Doglegn saw the fluttering of control the orphan had over his ancestors and expected that it was over. Then he saw the patience the young orphan was exhibiting. Zorx was being cautious, too cautious, giving the orphan time to regain his will.

Suddenly, Zorx moved without warning, summoning his strength and closing the distance between the two at astonishing speed. There was a blinding flash of light and a scream of pain as the two disappeared from sight.

As the Heyokah was able to see again, he saw only the orphan standing. Zonx had been stopped scant inches from the orphan, the orphan’s ancestors overwhelming Zonx’s and holding him in place while poison ravaged his frame and the orphan’s club ravaged his skull.

The crowd grew quiet and fearful as Doglegn approached the orphan. He stood and looked at the orphan.

Stamping his staff on the ground, he said “I am Heyokah Doglegn. Who are you?”

Unable to control his ancestors any longer, the young orphan collapsed to one knee.  Looking back at Doglegn with rage, he spoke for the first time in many years.

“Zhuol”

©2011 Scott Strange, Strangely Diabetic and http://StrangelyDiabetic.com

Meet the College Diabetes Network

** College season is upon us and I want to tell you all about someone I recently met who has a great passion for supporting diabetics as they transition through college and beyond. I met Tina at the 2011 Friends for Life Conference and learned of The College Diabetes Network which is dedicated to supporting students as they navigate the college waters.  I think it is a fantastic idea and it fulfills a desperate need for peer support.  With that, I’ll let Tina tell you more!

The College Diabetes Network

My name is Christina Roth and I recently met Scott at the Friends for Life conference a few weeks ago. (I agree with Scott! I highly recommend the conference! It’s a blast!). I was down at the conference on behalf of the College Diabetes Network (CDN), an organization I started my junior year at the University of Massachusetts Amherst.

My Story: I was diagnosed with diabetes when I was 14 years old and I struggled with diabetes throughout high school. I was finally able to gain some control over it when I got to college thanks to my CGM- but it wasn’t easy. For those of you who have been through college, regardless of if you are diabetic or not, I’m sure you remember the late nights, intense stress studying for exams, unhealthy foods (late night pizza anyone?!), crazy parties, bad decisions…..the list goes on and on.

Well as fun as “the college experience” is it poses many challenges to managing diabetes. Maintaining a healthy lifestyle and keeping sugars under control can be completely exhausting, especially on top of classes and a college social life. Compounding this is the fact that most colleges and universities offer NO support services to students with diabetes. “Diabetes” wasn’t even a health concern on my school’s health services website, never mind that the staff knew very little about the disease! I had to jump through hoops to be allowed to switch to a smaller meal plan as (surprisingly) the “all you can eat” meal plan, which allowed you to get as much food as you wanted three times a day but that wouldn’t let you take any food out of the building for between those times, was wreaking havoc on both my blood sugars and my finances. As everything was either simple carbs or sugar so I ended up just buying most of my food at the grocery store.

With the many issues we as diabetics have to deal with on a daily basis and all the added issues living at college, I began to try to reach out to other students going through the same experience. Surprisingly it turns out we are somewhat of a forgotten population which might have something to do with wanting to be completely independent and in charge of our own lives. However, I didn’t really see that as a good enough reason to have our health compromised, so it seemed the best way to solve this problem was to find a way to get students with diabetes together so that we could help each other.

2 ½ years later…What we have become!

“The College Diabetes Network (CDN) is a national non-profit organization which strives to empower, educate, and enable college students with type 1 diabetes to fulfill their potential and limit the negative physical and psychological effects of the disease. CDN’s ultimate goal is to create a community which will enable students to continue to thrive in both their healthcare and scholastic accomplishments, and enable them to leave college healthy and ready to pursue dreams.

The Website

The CDN website provides information to students on all aspects of life with diabetes on campus, including scholarships, studying abroad, nutrition, exercise, research, and available technologies. For chapters we offer tips on starting and running a chapter. For parents we offer tips on dealing with the transition and discussion boards where parents can connect with each other. The section for university administrators will be updated soon and will feature information regarding step-by-step ways in which campus administrators can pro-actively make changes to make life on campus less challenging for students with diabetes. The CDN website also creates online communities for both college students and parents where they can connect with others from across the country. We are continuously updating the information available on the website.

The Chapters

CDN chapters offer a way for students to connect, talk, laugh, and vent about life with diabetes on campus. If there is no chapter at their school yet, or if they have a student group that is not yet registered with CDN, it is easy to start and/or register. They can simply email us and we will walk them through it. We create a webpage for each chapter, on which information specific to that school and chapter is posted. We also create a CDN email address so that chapter leadership can be passed down as students graduate.

Chapters are created and run by students with a focus on peer support. CDN supports these chapters and their students by providing the most up-to-date information which relates to students’ lives and which the students themselves have expressed interest in knowing more about. We now have about 16 chapters located throughout the country and one in Canada. These chapters range in development from being established student groups that have registered with us, to students that want to start a chapter on their campus and are in the beginning stages of starting a group. All of our chapters are different, they are run by the students themselves and are based on what each particular group and their members are interested in. However we do offer support and suggestions for different events, meetings, speakers, etc. Within the next few months we will have a published “Chapter Toolkit” available which will be a step by step guide on how to start, establish, and run a chapter.

The Organization

Being a non-profit organization, a large amount of our time consists of making sure that we have the funding to successfully carry out our mission. We are currently working to strengthen our board of directors, bring in donors, apply for grants, and find sponsors. If you are interested in any of these, or have any suggestions for us, we would love to hear them!

CDN Website: http://collegediabetesnetwork.org/

CDN Facebook: http://www.facebook.com/home.php#!/pages/College-Diabetes-Network/241757184299

CDN Twitter: http://twitter.com/#!/CollegeDiabetes

CDN Blog: http://collegediabetesnetwork.org/about/blog

For information, questions, suggestions, or if you would like to start a chapter or get involved with CDN, please email me at croth@collegediabetesnetwork.org !

 

** Thanks Tina and I think what you’re doing is fantastic and hope as that more and more students find the resources that you and the CDN have developed; enabling them to not only find support for themselves but to support others in turn!