** Please forgive the brevity of this post and the lack of links to other great #JDRFGovDay posts; but I am really under the weather and also really wanted to get this done. Honestly, I really wanted to have it out there a week or two ago and I fear that I won’t really be able to do the experience the justice is deserves.
As I finish my series of posts about JDRF Government Day(s), I wanted to discuss the wonderful T3’s that I encountered there. Some of them were diabetic themselves and at breakfast Sunday morning, as we all stood to briefly introduce ourselves and explain why we were there, there was an incredible story from every single person. Some were tear-jerking, others inspirational. But the one thing they all had in common was that they were there for their loved ones; whether they’re still children or grown with children of their own.
But they were also there for those diabetics who are living day-to-day with diabetes; most of whom do not see how much effort everyone at the JDRF puts into research and advocacy for all diabetics.
This is where the DOC and the JDRF meet; right at the point where we want life to be better for all of us.
As I’ve mentioned in previous posts; there were entire decades where I did nothing to truly manage my condition and there is no logical reason that I should even be sitting here writing this right now. I was so alone in this; the depression, guilt, anger. It wasn’t till I found the DOC that I could actually start to reach some type of acceptance.
Until very recently, I was unable to read blogs by parents about the tribulations, not only of their CWD, but also the ones themselves experienced. They always upset me as I saw that child’s future thru the lenses of my past. And I would not wish that type of life on anyone; it was barely an existence, let alone a life.
It was survivor’s guilt and I was finally able to forgive myself for surviving. Lorraine over at This is Caleb was an incredible help to me in this regard. She may not realize it, but Lorraine? Thank you so much.
And all the parents I met in Washington? Thank you as well, you’ve given me a fresh perspective on life with diabetes. One that I was sorely lacking before. Everyone of us wants a cure, that’s a given. But what we want most of all is for our children, with or without diabetes, to have the best life that they can.
Even if the cure never arrives, we can give our kids the best we can.
Let’s all do that
** Disclaimer: The JDRF covered my travel, hotel and meal expenses for this trip to Washington, DC. They did not ask me to blog or not to blog about my experiences and these were my own thoughts and opinions **
© 2011 Scott Strange, Strangely Diabetic and http://StrangelyDiabetic.com