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Meeting the Parents

** Please forgive the brevity of this post and the lack of links to other great #JDRFGovDay posts; but I am really under the weather and also really wanted to get this done.  Honestly, I really wanted to have it out there a week or two ago and I fear that I won’t really be able to do the experience the justice is deserves.

As I finish my series of posts about JDRF Government Day(s), I wanted to discuss the wonderful T3’s that I encountered there.    Some of them were diabetic themselves and at breakfast Sunday morning, as we all stood to briefly introduce ourselves and explain why we were there, there was an incredible story from every single person.  Some were tear-jerking, others inspirational.  But the one thing they all had in common was that they were there for their loved ones; whether they’re still children or grown with children of their own.

But they were also there for those diabetics who are living day-to-day with diabetes; most of whom do not see how much effort everyone at the JDRF puts into research and advocacy for all diabetics.

This is where the DOC and the JDRF meet; right at the point where we want life to be better for all of us.

As I’ve mentioned in previous posts; there were entire decades where I did nothing to truly manage my condition and there is no logical reason that I should even be sitting here writing this right now.  I was so alone in this; the depression, guilt, anger.  It wasn’t till I found the DOC that I could actually start to reach some type of acceptance.

Until very recently, I was unable to read blogs by parents about the tribulations, not only of their CWD, but also the ones themselves experienced.  They always upset me as I saw that child’s future thru the lenses of my past.  And I would not wish that type of life  on anyone; it was barely an existence, let alone a life.

It was survivor’s guilt and I was finally able to forgive myself for surviving.  Lorraine over at This is Caleb was an incredible help to me in this regard.  She may not realize it, but Lorraine?  Thank you so much.

And all the parents I met in Washington?  Thank you as well, you’ve given me a fresh perspective on life with diabetes.  One that I was sorely lacking before.  Everyone of us wants a cure, that’s a given.  But what we want most of all is for our children, with or without diabetes, to have the best life that they can.

Even if the cure never arrives, we can give our kids the best we can.

Let’s all do that

Scott

** Disclaimer:  The JDRF covered my travel, hotel and meal expenses for this trip to Washington, DC.  They did not ask me to blog or not to blog about my experiences and these were my own thoughts and opinions **

© 2011 Scott Strange, Strangely Diabetic and http://StrangelyDiabetic.com

  • Scott, I’m teary eyed and yet smiling and I have no idea what I did to help that would deserve such a mention!

    You are a great encouragement to me, and I have always enjoyed our exchanges, be them snarky or deep and emotional. I’m so happy to have you as part of my support system and as a friend. 🙂

    • Scott

      As am I Lorraine

  • Hey, favorite cranky ol’ diabetic— you made me tear up at this post.

    I love your quote: “This is where the DOC and the JDRF meet; right at the point where we want life to be better for all of us.”

    • Scott

      Thanks Kelly

  • I love this post. But now I need a damn tissue!!

    Scott Im not sure if you realize what an amazing support system you are for us parents as well. I cant even count how many times Ive felt defeated and you have picked me up and made me smile, and for that I cant thank you enough.

    • Scott

      Thanks, Lexi that means a lot to me. I’ve seen you do the same and that’s why it’s one of those things you don’t need to thank me for

  • Thanks for this post, Scott. It made me tear up, too! I know parent blogs are hard for PWD’s to read- and I have always wondered why. Thank you for answering this question. I gain so much from all of you. And you are so right- what I want most of all is the best possible life for my girl- cure or no cure!!

    • Scott

      That’s why it is for me anyway, others may have different reasons. Parents like yourself make me see what’s really important and help remind me of that when I start feeling sorry for myself.

      I’m grateful to all of you for that

  • This is a great post in so many ways. Thank yoiu.

    Hope you’re feeling better quickly!

    • Scott

      Thanks Scott

      I am starting to feel quite a bit better, still get tired easily, but it’s much improved overall. I hadn’t realized how bad I had been feeling in general for lord knows how long until these antibiotics kicked in.

  • Stella’sMom

    Thank you Scott,

    We met on the plane ride home. I was so glad JDRF included bloggers this year. I learned a lot hearing from you all. I certainly understand now that the people with the disease can get weary of hearing about a far-off-cure, when they want support for the day to day stuggles. I’ve changed my tune a bit already with my daughter. Thank you for that. And I’ll likely be seeking advice for you in the future. My daughter’s recently being talking about how unfair it is that she has diabetes; no one else has it; and she hates diabetes. I try to just be supportive and not talk her out of any of those feelings. But I may need some more specific advice in the near future.

    Thank you.

    • Scott

      I remember chatting with you quite well. Please feel free to contact me at anytime if you think there is anything at all I can do.

      I think being supportive and just letting her vent on things is exactly the right thing to do. She’ll learn that it’s ok to be upset every once in a while at the unfairness of it all and not hold it in and let it fester

      Please keep me updated on how things are going!

  • Thank you so much for a wonderful post. Having the bloggers at Government Day this year made such an impact on me…

    Our Type 1 Children will grow up to be Adults with Type 1. We need to work together to make life easier for all of you while we are working for a cure and make sure that not one of you ever feel alone with your disease, young or old.

    • Scott

      Thanks Jeanne,

      Our children will grow up and they need to know they are not alone. Diabetes effects everyone that cares for them and those folks also need support from the community and to know that they are not alone as well

  • Thank you for this.

    It’s like the coach giving you a pat on the back and saying “GOOD GAME”.

    I needed that.

    • Scott

      heheh, glad I was here to help… /wink