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Invisible Chronic Illness Week

This week is Invisible Chronic Illness Awareness Week

30 Things About My Invisible Illness You May Not Know – A Meme

1. The illness I live with is: Type 1 Diabetes

2. I was diagnosed with it in the year: 1970.

3. But I had symptoms since: for a few months before my diagnosis.

4. The biggest adjustment I’ve had to make is: realizing that sometimes, even if I do everything exactly right, my blood sugars will still go out of whack – and that this doesn’t mean I’m to blame.  It just means that I’m not perfect, just like everyone else.

5. Most people assume: I can’t eat anything with sugar in it.

6. The hardest part about mornings are: not being a morning person

7. My favorite medical TV show is: House M.D., and tho it is fictional, it seems that most “real” medical TV shows are fictional too.

8. A gadget I couldn’t live without is: my CGMS

9. The hardest part about nights are: Going to bed on time, natural night-owl and that whole “not a morning person” thing

10. Each day I take __ pills & vitamins. (No comments, please) I take 5 pills a day, plus an aspirin,  a multivitamin, and Vitamin D.  I also do finger sticks to check my blood sugar 8 times a day or so and am plugged into my insulin pump and CGMS all day

11. Regarding alternative treatments I: get disgusted will those selling miracle “cures” for Type 1 diabetes.  There isn’t one.

12. If I had to choose between an invisible illness or visible I would choose: I’d probably keep the devil I know…

13. Regarding working and career: It can sometime be cumbersome, but usually I just let folks I work with know that I am diabetic.  I find that tends to  dramatically improve my chances of survival when I screw something up.

14. People would be surprised to know: The mental & emotional toll  of diabetes has been much harder on me than the physical aspects of the disease.

15. The hardest thing to accept about my old reality has been: It’s all/day, everyday.

16. Something I never thought I could do with my illness that I did was: be diabetic for 40 years and be free of complications. I was “supposed” to be dead 20 years ago…

17. The commercials about my illness: Celebrities regaling a glucose monitor as a “revolutionary”  advancement in diabetes care.  Please…  Oh, and don’t get me started on “life changing” cook books

18. Something I really miss doing since I was diagnosed is: Lord, it’s been forty years; I don’t really remember not being diabetic.  Of course that could just be my memory failing

19. It was really hard to have to give up: The idea that I have to do this alone

20. A new hobby I have taken up since my diagnosis is: Again, it’s been too long. I play World of Warcraft and L4D2 with Ninjabetic and ScottieJ upon occasion.

21. If I could have one day of feeling normal again I would: probably eat myself to the point of illness and not worry about it…

22. My illness has taught me: that I am responsible for my own health

23. Want to know a secret? One thing people say that gets under my skin is: The Diabetic Police telling what I can and can’t eat, hopefully, they will stop talking long enough to pass the potatoes.  Oh and all the horror stories about some distantly known diabetic friend or relative who lost a foot/went blind/died because of the “sugar diabetes”

24. But I love it when people: be curious enough to actually ask me an intelligent question.

25. My favorite motto, scripture, quote that gets me through tough times is: Everyone in this world has a cross to carry.  Some are light, some are heavy.  And sometimes they just seem extra heavy.  But there’s not one damn thing that says you have to carry it all by yourself.

26. When someone is diagnosed I’d like to tell them: It’s not easy at times, but you can do this.  Know you are not alone

27. Something that has surprised me about living with an illness is: It took me 39 years to figure out I wasn’t alone in this.

28. The nicest thing someone did for me when I wasn’t feeling well was: just a kind word now and again from friends

29. I’m involved with Invisible Illness Week because: Just because you can’t see our illnesses doesn’t mean our lives aren’t affected every day.

30. The fact that you read this list makes me feel: like you entirely too much time on your hands… /wink

  • Pastelpainter

    I really like this, meant to leave 5 * but the computer took over.

  • hehe, thanks… It’s just our robot-overlords showing off when that happens

  • Linda

    I don’t feel so alone….thanks…:-)

  • Hey Scott-
    Lots of interesting things learned about you in that MEME!
    Just saw that you will be at the TCOYD in Des Moines…I am in Des Moines and I am so sad that I won’t be able to attend (and meet you:( BOOOO). I always try to do a meet-up when I know someone will be close!

  • A bunch of are getting together Friday evening… do you know Kelly Rawlings, by chance?

  • @Linda I’m always glad to see a message like that and you certainly are not alone

  • SurvivorGirl45 (Heidi)

    That was so great; so many of my own thoughts, and thoughts I hope to have in the future. Thanks for sharing.

  • I don’t know Kelly but I feel like I should. Where are you all meeting up? Maybe I can stop by?

  • She said “a brewery” and you are certainly welcome to stop by, are you on twitter? she’s @KellyRawlings

  • Hi Bill,

    Not from Des Moines, was just up from KC for the TCOYD event. The world is small enough that we may very well run into one another sometime