A prejudice by any other name, would still smell as foul

You know, I’ve always been pretty open with folks about my health issues, especially after I found all the great people in the DOC. I finally learned of one of my own biases, a prejudice if you will, that I had. That was, of course, the worthless “who has it worse” T1 v T2 argument.

What little I “knew” of T2 I had “learned” just like most people, from the media and the diabetes horror stories that everyone seems to know.  Coming into the DOC allowed me to see that bias for what it truly was, just plain old ignorance. Well, I am somewhat ashamed to say that I have found another one of those.

I have been uncomfortable talking about a condition I have recently developed and since I am usually pretty open with what is going on, I finally started to ask myself why. It is another bias, a prejudice that I had in me. I have essential tremors; my hands tend to shake when I try to do some things. It has become noticeable to others at times, but I guess it is what it is.

But, I had yet another prejudice: I felt that those tremors made me less of a person, less of a human, broken somehow. Why did I feel that way? I don’t about my D.  Was it simply because it was a “visible” condition, unlike diabetes and depression? I honestly don’t know the answer to that.

Even worse, that means I was thinking that way about others. I really don’t like this about myself, and I hope I can keep it in mind when I hear what others are going thru. As with any prejudice, admitting that I have it is a start, but I need to ask myself “If I was going thru that, would I be open about it?” If the answer is no, then I may very well have another bias coming into play.

I think is another instance of how media and cultural things can affect us and we don’t even know it. Hopefully, I can keep my mind open enough to realize this in the future.

Thanks to all of you
Scott

Today’s snarky comment: What do you mean, I need to basal test? I suppose you’re gonna tell me next that I need to change my lancet too.

Posted in dblog diabetes. 3 Comments »

Le Life

I can’t even describe how insanely busy things have been lately…

Last week, I had to take my uncle to the hospital, he’s 90 w/alzhiemer’s and has been living alone since my aunt passed away about 5 years ago.  He was hallucinating when I got there and refused to go with me to the hospital, so I called 911 and one of the EMT’s was able to talk him into going.   His daughter needs to get a durable power of attorney, so she can make medical decisions for him, it would have been interesting if he had refused to go.

He was there for about a week and when he got out, my brother-in-law agreed to stay with him until my uncle’s daughter could get to KC from the Bay Area.

He has a couple of anti-dementia meds he is supposed to take, but he can no longer remember to take them or if he’s taken them today.   He’s 6’2″ and was down to 135 pounds, so I don’t think he was even remembering to eat.

He’s also suffering from “sundown syndrome” where he’s much more cognisant in the morning than in the evening hours.  It is almost like he has not take any medications at all some evenings.  It is probably something to do with the body’s normal rythems, much as we diabetics can see in the “dawn phenomena”.

My brother-in-law, who’s mother has alzhiemer’s also, says that it is very difficult for him to handle my uncle at times.  We all pretty much believe he need’s to be somewhere to get professional care 24/7, I hope that can get arranged soon.

Now he’s back in the hospital with pneumonia.  /le worried

Then work is just crazy atm.  We’ve purchased a new product line and are full-bore in the middle of the transition.  Some of these products are FDA regulated, so we’re going be dealing with a whole new animal than we’re used to.  I have a ton of SOP’s to write, luckily I’ve written a bunch for our sister company who is a pharma manufacturer, so we’re able to get some info from them. 

We’re also going to be implementing bar-coding as a part of this, so new interfaces to test and document.  Luckily, we have a good relationship with a local vendor that sells just such a package that works with our enterprise system. 

All by April 30.  /le sigh

Once that gets done, we dive right into a major systems upgrade for our enterprise system, I’ll be managing that project, so it is really ramping up now trying to hit a July 31 cutover date. /le moan

And then I get to deal with the D. 

It’s been pesty lately.  I take symlin w/ meals (Did you honestly think I would settle for just one type of diabetes? /wink) and as I loose weight, I’l hit a weight and have to retune all my pump settings.  I’ve been kind of hovering at one of those points lately.  Add a pound or two, need more insulin.  Loose a pound or two and I need less.  I’m trying to loose a little more, to get into a more stable weight range, but just can’t seem to get a that last few off. /le grumble

Hell, between 9pm and 4am I only basal 0.1 units per hour, and I am still getting lows around 1 am.  Of course at about 4am, I bump it up to 1.4 units an hour… /le boggle

I am finally begging to trust my Dexcom, even tho I had to replace 8 out of the first 12 sensors I received.  The only time that it is off by more than about 10 points is when my sugars are rapidly changing or when it needs a calibration reading.  All in all I’m happy with the CGMS, not to happy with the reporting on it tho.  Dexcom keeps all the data encoded so only they can see something, like alarm history. /le mostly happy 

Hmmm…. I wonder if they could be forced to release that info under HIPPA?  It is my data and if I request, the law requires that I be provided it. /le Hmmm…

I’m starting on an excel template that will take a data dump from my Minimed pump and my Dexcom CGMS to merge the two so I can get some reports like I got when I was on the MM CGMS.  The MM Carelink system is pretty good.  /le one more damn thing to do

Ok, enough rambling for today

Thanks for stopping by,
Scott

Today’s snarky comment:  If time equals money, that may explain why I seem to have none of either.

A Strange Start

I’ve decided that I want to become more of an advocate, especially here in Kansas City.  It is estimated that there are around 250,000 diabetics in the Kansas City metro area and there just seems to be a roaring silence about it.  About the only time anything is heard about diabetes is during National Diabetes Month every November.  And while that is good, diabetes just doesn’t take the other 11 months off.

But how do I accomplish that?  I have no idea outside of cold-calling various organizations and hospitals.  I’ve been talking with one clinic off and on since December, but things just don’t seem to be moving very quickly, if at all.

How can I get started?  I know I can blog more, but I’m just not sure if I’ll actually be able to do more than one a week or so.  I am much better at face-to-face than electronic.

I would so greatly appreciate it if some of the very talented members of the DOC could help me out!

I need input, ideas, dirty tricks!

Posted in dblog diabetes. 9 Comments »